The New York Noids patient support group
has officially changed its name to Big Apple NETs. We’ve done that as part of the effort in the
neuroendocrine cancer community to stop using carcinoid or Noids in our case
and to switch the terminology to neuroendocrine tumors (NETs). Emily Zuckerberg is the leader of the group
and spouse of a NET patient. She has been working diligently to get this group
up and running since 2013. We meet on
the last Sunday of each month. We have a
new website at bigapplenets.org that was designed by Nancy Stone, one of our
members and a lung NET patient. The
website is full of information on our group’s and other NET events, news in the NET
community, medical centers that treat NETs in the Northeast and resources for
NET patients. Nancy did a great job of
learning html and putting this together!
Big Apple NETs is also hosting a lunch
with some of the doctors from Mount Sinai on April 12th. This is a unique opportunity to share
experiences with others who have similar concerns and to hear from expert
physicians in an informal setting on issues ranging from NET cancer treatments
and surgery to follow-up testing and new developments. We are hoping to host other events in the
future.
Please take a look at our new website and
join us for a support group meeting or event.
I love the zebra apple!
