The New York Noids patient support group has officially changed its name to Big Apple NETs. We’ve done that as part of the effort in the neuroendocrine cancer community to stop using carcinoid or Noids in our case and to switch the terminology to neuroendocrine tumors (NETs). Emily Zuckerberg is the leader of the group and spouse of a NET patient. She has been working diligently to get this group up and running since 2013. We meet on the last Sunday of each month. We have a new website at bigapplenets.org that was designed by Nancy Stone, one of our members and a lung NET patient. The website is full of information on our group’s and other NET events, news in the NET community, medical centers that treat NETs in the Northeast and resources for NET patients. Nancy did a great job of learning html and putting this together!
Big Apple NETs is also hosting a lunch with some of the doctors from Mount Sinai on April 12th. This is a unique opportunity to share experiences with others who have similar concerns and to hear from expert physicians in an informal setting on issues ranging from NET cancer treatments and surgery to follow-up testing and new developments. We are hoping to host other events in the future.
Please take a look at our new website and join us for a support group meeting or event.
I love the zebra apple!