Since my surgery in 2013, I
have had problems with bowel movements – everything from frequency size, color,
timing and consistency. Prior to surgery, I had no bowel
issues, basically one bowel movement a day every day. My issues post-surgery seem to derive from having
a shorter small intestine and not carcinoid syndrome, which causes diarrhea in
a lot of people. My doctor has had
several suggestions over time such as eating more soluble fiber, CREON (a
pancreatic enzyme to help digestion), taking benefiber daily and Imodium as
needed. Some of these helped marginally
but my bowels never returned close to “normal” like they were before
surgery.Over the years I had heard
about people using black raspberry powder (BRP) for relief of diarrhea due to
carcinoid syndrome. In my opinion, Lucy
Wiley, another blogger, is the expert on BRP. You can find links to her blog describing how to use it and its benefits
here:
http://lucysnoidblog.blogspot.com/2011/12/black-raspberry-powder-video-thanks-to.html?q=brp
http://lucysnoidblog.blogspot.com/2012/01/brp-diary-what-i-learned-today-just.html?q=brp
http://lucysnoidblog.blogspot.com/2012/02/extract-black-raspberry-goes-portable.html?q=brp
Prior to reading the carcinoid message boards I had never heard of a black raspberry much less black raspberry powder. BRP is a powder made from dehydrated black raspberries. Dr. Woltering at Louisiana State University is a strong proponent of BRP and believes that it inhibits tumor angiogenesis. Tumor angiogenesis is the sprouting of new blood vessels that enable tumors to grow. There has been a lot of research done on BRP, mostly in labs and on mice, but no human clinical trials that I know of. Dr. Woltering’s paper on BRP and its angiogenesis properties can be found here:
http://www.ochsner.org/content/misc_files/black_raspberry_paper.pdf
After years of hearing about BRP and its benefits, I decided to try it myself in late February. I looked into the suppliers of BRP and found Berrihealth (www.berrihealth.com) . Lucy Wiley is also using this supplier for the BRP. The only other source I have located is Nutri-Fruit that can be bought here:
http://www.vitacost.com/nutri-fruit-powder-black-raspberry-5-oz
Dr. Woltering suggests the following protocol:1 gram of BRP per kilogram of body weight. 1 quart of lukewarm water. Mix in the BRP and water. Stir and refrigerate overnight. The next morning, put the liquid through a strainer to eliminate the residue and seeds. Drink the quart of BRP throughout the day until finished. I also follow Lucy Wiley’s very good suggestion of storing the BRP mixture in two Snapple bottles.
In order to follow this protocol daily, one needs a lot of BRP. The best way to get a large quantity of BRP from Berrihealth is to go on their website and contact them by email or phone. You must notify them you are a NET patient to order the BRP in bulk.
The contact information is here:
http://www.berrihealth.com/community/contact
They sell a 1,500 gram 3-pack of BRP for a substantial discount per gram. Depending on how much you weigh and if you are following the higher dose protocol above, the cost could be around $8 a day. When you buy a bulk package from Berrihealth, 5% of the proceeds go to carcinoid cancer research. Here is a picture of one of the BRP bags:
The dosing for Dr. Woltering’s
protocol is as follows:
As you can see above, the dose is quite high for this protocol. The bag of freeze dried BRP says a serving size of 2 teaspoons is 8 grams. I don’t have a gram scale so I translated the doses into tablespoons and that is how I measure out the BRP. A tablespoon is equal to 12 grams.
When I received the BRP, I started using 2 tablespoons (24 grams) just to see how my body would react. I weigh about 150 pounds, so the Woltering protocol would have me using close to 6 tablespoons daily. I noticed a positive change in my bowel movements within 24 hours and it was even better after a few days. I was altering between 2 and 3 tablespoons per day in the quart of water. My bowel movements were much less frequent (1-2x per day), much less voluminous and the color was a normal brown instead of yellowish. I was amazed at the difference!
The BRP has a mild taste of berries but it is quite thick when mixed and steeped overnight. I have been adding flavored club sodas, cranberry juice, herbal teas and diet ginger ale to enhance the taste and make it less dense.
My bowels were doing quite well but I was having trouble
drinking as much as 4 cups a day of the mixture, especially when I was mixing
in the tea, seltzer or other liquids. I
lowered the water to 3 cups and used 1 tablespoon per cup of water or 36 grams
a day. At 36 grams a day, the cost is
about $5 a day, rather than $8 or more for the higher dose.
So, after about a month of playing with BRP and dosing, I’ve had better bowel behavior. The downside is that I have added a few pounds to my weight. Better bowel behavior was my primary goal and BRP has exceeded my expectations. At this point, I’ll stick to the dose of about 36 grams a day mixed with 3 cups of water, hoping that it can also help with slowing my tumor growth.
http://lucysnoidblog.blogspot.com/2011/12/black-raspberry-powder-video-thanks-to.html?q=brp
http://lucysnoidblog.blogspot.com/2012/01/brp-diary-what-i-learned-today-just.html?q=brp
http://lucysnoidblog.blogspot.com/2012/02/extract-black-raspberry-goes-portable.html?q=brp
Prior to reading the carcinoid message boards I had never heard of a black raspberry much less black raspberry powder. BRP is a powder made from dehydrated black raspberries. Dr. Woltering at Louisiana State University is a strong proponent of BRP and believes that it inhibits tumor angiogenesis. Tumor angiogenesis is the sprouting of new blood vessels that enable tumors to grow. There has been a lot of research done on BRP, mostly in labs and on mice, but no human clinical trials that I know of. Dr. Woltering’s paper on BRP and its angiogenesis properties can be found here:
http://www.ochsner.org/content/misc_files/black_raspberry_paper.pdf
After years of hearing about BRP and its benefits, I decided to try it myself in late February. I looked into the suppliers of BRP and found Berrihealth (www.berrihealth.com) . Lucy Wiley is also using this supplier for the BRP. The only other source I have located is Nutri-Fruit that can be bought here:
http://www.vitacost.com/nutri-fruit-powder-black-raspberry-5-oz
Dr. Woltering suggests the following protocol:1 gram of BRP per kilogram of body weight. 1 quart of lukewarm water. Mix in the BRP and water. Stir and refrigerate overnight. The next morning, put the liquid through a strainer to eliminate the residue and seeds. Drink the quart of BRP throughout the day until finished. I also follow Lucy Wiley’s very good suggestion of storing the BRP mixture in two Snapple bottles.
 |
| Thanks to Lucy for this idea |
In order to follow this protocol daily, one needs a lot of BRP. The best way to get a large quantity of BRP from Berrihealth is to go on their website and contact them by email or phone. You must notify them you are a NET patient to order the BRP in bulk.
The contact information is here:
http://www.berrihealth.com/community/contact
They sell a 1,500 gram 3-pack of BRP for a substantial discount per gram. Depending on how much you weigh and if you are following the higher dose protocol above, the cost could be around $8 a day. When you buy a bulk package from Berrihealth, 5% of the proceeds go to carcinoid cancer research. Here is a picture of one of the BRP bags:
The dosing for Dr. Woltering’s
protocol is as follows:
Body Weight in Pounds =
|
Body Weight in Kilograms (kg)
|
BRP in grams (gr) daily
|
125
|
57
|
57
|
150
|
68
|
68
|
175
|
80
|
80
|
200
|
91
|
91
|
225
|
102
|
102
|
As you can see above, the dose is quite high for this protocol. The bag of freeze dried BRP says a serving size of 2 teaspoons is 8 grams. I don’t have a gram scale so I translated the doses into tablespoons and that is how I measure out the BRP. A tablespoon is equal to 12 grams.
Body Weight in Pounds
|
BRP in grams (gr) daily
|
Tablespoons
|
125
|
57
|
4.8
|
150
|
68
|
5.7
|
175
|
80
|
6.7
|
200
|
91
|
7.6
|
225
|
102
|
8.5
|
When I received the BRP, I started using 2 tablespoons (24 grams) just to see how my body would react. I weigh about 150 pounds, so the Woltering protocol would have me using close to 6 tablespoons daily. I noticed a positive change in my bowel movements within 24 hours and it was even better after a few days. I was altering between 2 and 3 tablespoons per day in the quart of water. My bowel movements were much less frequent (1-2x per day), much less voluminous and the color was a normal brown instead of yellowish. I was amazed at the difference!
The BRP has a mild taste of berries but it is quite thick when mixed and steeped overnight. I have been adding flavored club sodas, cranberry juice, herbal teas and diet ginger ale to enhance the taste and make it less dense.
My bowels were doing quite well but I was having trouble
drinking as much as 4 cups a day of the mixture, especially when I was mixing
in the tea, seltzer or other liquids. I
lowered the water to 3 cups and used 1 tablespoon per cup of water or 36 grams
a day. At 36 grams a day, the cost is
about $5 a day, rather than $8 or more for the higher dose.So, after about a month of playing with BRP and dosing, I’ve had better bowel behavior. The downside is that I have added a few pounds to my weight. Better bowel behavior was my primary goal and BRP has exceeded my expectations. At this point, I’ll stick to the dose of about 36 grams a day mixed with 3 cups of water, hoping that it can also help with slowing my tumor growth.
